Amyotrophic Lateral Sclerosis: A Patient Care Guide for Clinicians is intended as a practical reference for clinicians caring for ALS patients, and will bring together the collective wisdom of those at the forefront of patient-oriented research and practice. This will be an official project of the ALS Research Group (founded by Dr. Mitsumoto and currently headed by Dr. Bedlack), and provides both an evidence-based and experience-based guide to multidisciplinary ALS care. The book will begin with a brief review of current concepts of ALS including diagnostic criteria, genetic and sporadic subtypes, epidemiology, co-morbidities and prognosis. Individual chapters then tackle the gamut of specific issues that arise in caring for people with ALS, from breaking the news all the way through end-of-life care and bereavement. Amyotrophic Lateral Sclerosis: A Patient Care Guide for Clinicians is divided by disciplines, mirroring the way large multi-disciplinary ALS clinics operate and includes pertinent material for each member of the care team. Each section will has one primary author from that discipline (an expert ALSRG member), who will review the specific issues they have seen arise and review the evidence-based options presented for each issue. Each section will also has a group of secondary authors, other experts from the same discipline who offer counterpoints or other ideas about how to handle clinical problems (i.e. use of lipids and statins, screening for driving, etc.)—essentially what has or hasn't worked for them—thus capturing the variety of opinions across experts in the field and providing real-world care information that isn't available or documented anywhere else.
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